11/17 - Noon Update

Emily had her Bronchoscopy today and they were able to suction out a lot of plugs and thick stuff from her right lung. Tomorrow morning another X-ray will be taken and it will be more telling of how her lung really is. She is much happier today, since they have changed medication, so we are able to relax a little. We are also hoping to spend some time with Annabelle this weekend -- so thank you to the people that have volunteered to sit with Emily while we are out, and please pray that she will have a good weekend!! Cheers, Nate


MJ said…
Hello Lee Family,

My name is MJ Purk. My real name is Margaret. I am 18 years old and am a freshman in college. I have SMA type 1. I came across your website through Linnea's website. I will be praying that Emily is able to come home, healthy, very soon.
I have an organization that sends blankets to kids with SMA and would love to send one to Emily. My organization is called B4SMA. My caregiver and several others make the blankets. If you would like more information, check out http://www.our-sma-angels.com/b4sma/ and/or http://www.caringbridge.org/ny/b4sma/
Should you decide that you would like to receive a blanket, please e-mail me with your post address. All we ask in return is a picture of Emily with her blanket covering her. Also, if I can help answer any questions you may have regarding SMA, please don't hesitate to email me at any time. I know that you already have knowledge about SMA because of Linnea but if I can help, please don't hesitate to e-mail me. I am not afraid to answer any questions you might have.
Big hugs to you and your family.