VanNews and our FUNd Raiser

Greetings folks - we had a great day today! Emily was in a great mood and didn't have too much trouble with her secretions and we spent the gorgeous day having a yard/bake sale!! On Wed Diana decided that she wanted to have a back sale so we can bring some $$ to Chicago and participate in a silent auction to benefit Families of SMA (FSMA.ORG). We raised nearly $300!! Oh yeah -- Ummm, I guess I didn't mention this..... Diana, myself, and Emily are driving up to Chicago this coming Wed to attend the annual FSMA conference. If you don't already know, FSMA is an international organization focused on raising funds for SMA research, family care, etc. They are the largest organization of it's kind, serving SMA families. :) Anyway, we are blessed and have received scholarships to pay for our trip, so our main concern can be managing Emily. We have never taken a road trip like this with Emily and our van (I'll get the van in a minute) will not work... soooo, some of our awesome friends are loaning us there comfy van to make the trip in. Again, we are blessed! Please pray for us on this trip - that Emily would travel well and that our time with other SMA families and hearing the latest news about research and care would be incredible. We are excited.

The other news has to do with our "little" battery acid spill in our minivan. I have used baking soda, battery acid neutralizer, oder neutrilizer, MORE baking soda, vinegar, water, etc, etc and I CANNOT get that smell out of the van. In fact, the acid continues to corrode the metal and has started eating away at one of the bolts that holds the seatbelt to the floor. I have ripped out carpet, etc, etc. It is awful. My eyes and nose sting every time I get near and/or in the van. So, after trying everything I could I called our insurance company to see if this could be covered. Installing new carpet alone will cost upwards of $900, not to mention cleaning and detailing. Anyway, they directed me to a local auto body shop and that is where the van is now. The guy came out to make an assessment and immediately saw that they were not going to be able to adequately clean this van. :( To make a longs story as short as possible - the van may be totaled. Our insurance company is supposed to send out an adjuster to figure it all out, but I really don't know how it could possibly be saved with the corrosion that is already going on. Amazing!
So, we've been praying that God would work with us on this van thing - it wasn't working for us and Emily and we needed to sell it or trade it in for a medical van... I have no idea how this is going to turn out.

Ok - this is the crazy thing. I've been trying to figure out a plan to get us in the van we need for Emily. This seems to be a theme now - when I start planning something, these sorts of things start to happen. HONESTLY! I was making plans for my career (very un-me like) and then we end up moving where we are RATHER than farther West where I wanted to be. I decided that I could make a career out of managing specialty retail stores, and then I get the job I have now. Why plan?! I am not completely asking that question as if I really don't think we should plan, but should we? We must b/c we are human, I'll give you that much, but the Bible says, "a man makes his plans in his heart, but the Lord directs his steps," or something like that. Maybe it's not so much what we plan, but WHY we plan. I haven't figured that out yet, but I have my suspicions. But we're constantly forced to fly by the seat of our pants (aka - trust in God - which we do), so why the heck do I invest any of my heart and soul into some crazy plan of mine?!

That being said, I am trusting that God's plan, as always, is perfect. We will take what we can from this van experience, even if it getting the darned thing back and having to try and sell it or something. As I said before - if I only focus on how to NOT have that van then I will completely miss out on what there is to learn by having it. :) I love that van... NOT! But I love having it if that is what God wants for us right now.

Peace <><


Mary@notbefore7 said…
I am glad the fund raiser worked out and hope the trip is a blessing to you guys!