7/15: Emily is 2!!!

We knew she could make it,
but it had to prove true,
Emily has turned 2!!

What an exciting day it is! Our little Emily Hope has reached an incredible milestone for a child with Spinal Muscular Atrophy (SMA). It is estimated that 50% of kids affected by SMA will die before their second birthday. In a small way, Emily's life is showing the world, and the medical community, that SMA kids CAN have a good quality life. With good care, and properly educated doctors and parents, our kids CAN live to 2 years and beyond. With proper nutrition and respiratory care our kids CAN return home from Emergency Room visits happy and healthy. With proper care at home our kids CAN prolong the need for hospital stays, intubation, and ultimately, an untimely death... at least for a time. This care is rigorous and tiring, but their beautiful lives are worth the effort in our opinion.

Thank you all for the support you have given us - it enables us to continue giving Emily the level of care we are compelled to uphold. It has given her the opportunity to experience more of the lovely things - and it has given others the opportunity to experience a different, but rich side of life.

Thank you!

Peace <+>< Nate

Comments

Jana said…
Yeah Emily and family! It's such a joy to know your child has surpassed all expectations and then go on to do even more! God is good! Love Jana and Kyle.
MJ said…
Happy Birthday to You, Happy Birthday to You, Happy Birthday Dear Emily, Happy Birthday to You!!!!!!!! One more time, because you are 2! Happy Birthday to You, Happy Birthday to You, Happy Birthday Dear Emily, Happy Birthday to You!!!!!!!! Sorry you are not feeling well. Hope you are still able to enjoy your special day!
Mari said…
Happy Birthday, Hugs & Kisses, Joy & Peace, Prayers & Praises from your Great Aunt Mari
B_bookish said…
I rejoice in the Lord with you and your family, Nate.
Mary@notbefore7 said…
So happy for you all and Emily! We can wait to celebrate with you.