12/20: HOT NEWS!!

At about 4pm today Hopkins mechanically coughed Emily for the first time via her intubation tube!! I believe Emily is the first a Spinal Muscular Atrophy patient to receive Cough Assist treatment while intubated at Hopkins. They had a negative experience a few years back trying this (not sure what disease it was associated with), but we've convinced them to do it with Emily and it went very well. We got some good thick stuff out which is what we we believed would happen. We had some help from other Docs around the country, so thanks to them. Hopkins WOULD NOT cough Emily via her tube last year when she was intubated, so this is great progress for Emily and for all SMA patients that visit Hopkins in the future!!

This changes the situation with going to CHOP. It is still a more comfortable hospital for an SMA family to be in, but we'll see how things go.

Thanks for your prayers and for checking in.

Peace <><


Joanna said…
YEAH! praise the Lord!
Eileen said…
Keep fighting for what you believe is best for her! I am so happy they are listening!

Nate said…
Thanks for the notes and prayers Joanna and Eileen. We are blessed to have so many people praying for Emily and for us.