12/24: Emily's doing great

This evening Emily is just doing great! I held her for a bit after I bathed her and it was nice. She just looked up into my eyes and sorta made little noises. Ok, so I don't know why she was making the noises, but I think it's b/c it felt nice to be held. :) I can't wait to get her home again!

If things keep going the way they are we'll be home before we know it. :)

I wanted to point out that, despite our disagreements with the docs and protocols here at Hopkins (there are MANY disagreeable points), the nurses and respiratory therapists have been great. They've worked with us through the most frustrating of times and always respected our expertise while looking after Emily with their own personal touch. Thanks! In my opinion there is still a lot of work to do if Hopkins is going to be a safe place for Type I SMA kids, but I think the right people are here to make that happen. I plan to do what I can to encourage those changes!

Peace <><

Comments

Gin said…
Lees-

So glad to hear that Emily is doing great! You're in my prayers.

Merry Christmas!
Gin
Nate said…
Thanks Gin! Merry Christmas to you too!!