Monday, October 27, 2008

The girls ( courtesy of Nurse Krissy)

Sent from my iPhone :: Peace <><

Wednesday, October 22, 2008

The Beach!! <;)

Yup - we spent three nights at Rehoboth Beach in DE and it was great. Emily was already on antibiotics when we left, but all was well. We just continued her respiratory routine "on the road." Best of all, our newest nurse Krissy, and her husband have become good friends and they spent the weekend with us - even let us go on a date. Yeah, we just sat and stared at each other - actually we made fun of each other by smearing our faces using the FaceMelter app on my iPhone. So we ended up crying... but from laughter. And made our usual stop at the nearest Thai restaurant for some Southest Asian goodness. Yum Yum. No, that wasn't the name of the dish - the food was tasty. :) Here's a slideshow from our web albums:

Other than that - Emily continues to fight with something. Her O2 saturation will suddenly drop into the 80's with a horrible cough and some anxiety. We're getting big green thick plugs out of her, but otherwise she's happy - not miserable like when she was younger. So, we're working through it and sleeping attentively - yes, that is an oxymoron, but that's the way it is.

Annabelle's getting pretty good at her 1st grade reading, Diana is making some awesome earrings to raise money for Emily's Medical Fund and for SMA research (more to come on this), and I am working an additional part-time job and finishing my last stinking credit for school. Heh - don't even ask when all that happens cause I'm not sure.

Peace <><

Thursday, October 16, 2008

Fall Festival Funalicious

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Friday, October 10, 2008

First sand sculpture of the weekend :)

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Thursday, October 09, 2008


Holy Canoly -- It's been almost a month. I am a bad blogger. :/

A quick run-down:
  • I re-launched a new SMASpace for the SMA community. Check it out!
  • We are leaving today (Thur) for a 4-day weekend at the beach: our longest "vacation" in about 6 years!
  • We're scrapping our Honda. Repairs are more than the cars worth.
  • Emily's been kinda sick for about a week. :/ Nothing real severe, but you never know how these things are going to manifest themselves. Plus, she misses a lot of school with the combination of being sick and a lack of nursing staff.
  • I will be starting a part-time job soon.
That's about it for now. We're enjoying life as it comes. You do the same! :)

Peace <><