Sunday, November 30, 2008

For Emily bathtime means weightlessness. U'd b smilin too :)

Sent from my iPhone :: Peace <><

Friday, November 28, 2008

Annabelle insisted we start with the Christmas decorations :) Looking good!

Sent from my iPhone :: Peace <><

Monday, November 24, 2008

Earrings for SALE!

Diana has been working uber hard one making earrings to raise money for Emily's medical fund and for SMA research. She's done well at a couple of events so we've consolidated pictures of her work in some web albums to sell. I was hoping to have a site launched to sell them, but life events have made this difficult, so we're taking the easy road for now. :)

Are you looking for a nice gift for that special lady?? Hmm?? Well look no further than the albums below. Behold the beauty and affordability!! Place your order today by emailing Diana at diana@hopeforemily.com with the item number which is shown below each picture.














Saturday, November 22, 2008

Landsdowne Resort: alone for an afternoon and night. Second time away from Emily together in 3 yrs.

Sent from my iPhone :: Peace <><

Tuesday, November 18, 2008

Emily L-L-LOVES her swing time

Sent from my iPhone :: Peace <><

Monday, November 10, 2008

FALL

I have some pictures to put up but I've been slammed at work. There are more in our PicasasWebAlbums -- and here we go (there are some short thoughts at the bottom):

Veggie Tales Live

Emily and Mary -- Soooo fun to meet the Nelsons!!

Bob Ross, 50's girl, and our two cats

Nurse Krissy time!!

Daddy time

Fun at the farm with Mommy

Visit from our good friend Barry

Some sleepy time

Heehee -- fuzzy. :)

Annabelle's self portrait :)

The latest is that the company I work for is dropping the only insurance plan that covers Emily nursing and some of her DME. So, I will most likely be switching to another company very soon in hopes of finding the coverage that we need. This part is really not fun b/c insurance companies will say "sure, we cover that" and then they don't. So we are strategizing and figuring out what this means for us.

Also, Emily's been sick for over a month now -- three kinds of antibiotics and lots of night-time mucus plugging. Please keep her health and our sanity in your prayers. We DO NOT want to end up in the hospital this year!! :) Emily's fighting it with style and grace, but being completely helpless certainly makes that tough. :/ She's our little hero.

The rest is business as usual. -- not sure what that means, but I guess it's true.

Oh, Annabelle went to a sibling workshop at Emily's special needs pre-school this evening and watching her just reminded me again of what a blessing she is to us. Siblings of special needs kids are A-Mazing! Seriously. I can't imagine myself at that age having as much grace and poise in the midst of some truly frightening experiences as we have had in our home with Linnea and now Emily. Annabelle is special kid. :)

Peace <><