Emily Updates

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For Emily bathtime means weightlessness. U'd b smilin too :)

November 30, 2008

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Sent from my iPhone :: Peace <><

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Anonymous said…

I never get tired of her smiles!

08:52

Yippee, Emily is 3!!

Our beautiful baby girl is three years old today!!! It has been an amazing journey, and we have learned so much about life. What's important, what is not. Who we are, who we aren't. What we can do, what we can't. What we can dream, what we can accomplish. What we love, what we need to love. Who God is, who He's not. What is love... baby don't hurt me, don't hurt me... no more .... uh - sorry. We have learned about love, though, what it is and what's it's not. Emily's life, with God's perfect purpose, teaches us more than we can ever imagine. She is the center of our lives, which keeps us from centering our lives on trivial things. She teaches Annabelle to love, when a smile is all she can give in return. She defines Diana's purpose, and clings to mommy's love. She shows her A-yee (aunt Cindy) that she loves and trusts her every move, completely. She teaches me that NOTHING in this world matters more than what God has given

Remembering Linnea Grace

It was four years ago, on this 21st day , that our Lord took her away. She's always in our hearts and mind : but more importantly, she's perfectly in Heaven with our Creator and Provider of all things good! Thank you Lord for the blessings You provide, and for the wonderful time we had with your child, Linnea. Peace <><

Day 1: Sinai PICU #SMA

So here we are - another Holiday season in the PICU. This will be the third year in a row, different hospital each year, that we've spent my B'day and New Year's night at the hospital. But, do you know what?! It's worth it as long as we have Emily with us! :) In fact, I think the only major holiday we haven't spent in the PICU with either Linnea or Emily is the 4th of July. Anyway, poor Emily has a partially collapsed right lung with all the associated problems -- 4L of supplemental O2, increased BiPAP settings, lots of coughing, very very thick secretions, etc. We're doing treatments every 2 hours with the PICU staff and getting a bunch more cultures to see what's growing. Regardless, she is on Tamiflu and a new antibiotic. We're here, which is good. They cleared a bed for us b/c they were full, which we are incredibly grateful for. I am SO happy that we decided to not go back to Hopkins and found Sinai!!

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