As we anticipate the worst of Emily's RSV in these next few days, Nathan and I are camping out in Emily's room, taking turns napping and keeping an eye on things, making sure Emily's treatments and such are on par. Nathan and I work well in these hospital situations. I am thankful for my guy!
Emily is on 45% O2, with non stop Bipap and treatments every 2 hrs. around the clock. She has slept most of the day and has had a few major desats. Her secretions are like glue, so we are doing our best to get them out. She was awake this evening, played with her balloon and suction yankauer for a few minutes before that wiped her out and fell back asleep.
Thank you everyone for your prayers and support. Annabelle is back in VA with her grandparents and cousins, so hopefully that relieve some of her heartache from being away from us. That is one of the hardest aspects of this life for us. Having to send Annabelle away all the time. Every time she wraps her arms tight around my neck, not wanting to let go, trying to hold back her tears, it breaks my heart. It's like we are making her grow up too fast. And she is so amazing about all of this. So in your prayers, please pray for us as well as Annabelle, for her understanding and her peace at heart. It's been awhile since she has had nightmares, but she has had dreams about being left in the trash or pushed into the street and no one is there to help her.
Thanks for checking in and keeping up with our lives. The blessings we receive are humbling and encouraging. I always pray that we can be a blessing to those around us, somehow, because we are always in such need. : ) Diana