JCMC: Day 2

As we anticipate the worst of Emily's RSV in these next few days, Nathan and I are camping out in Emily's room, taking turns napping and keeping an eye on things, making sure Emily's treatments and such are on par. Nathan and I work well in these hospital situations.  I am thankful for my guy! 

Emily is on 45% O2, with non stop Bipap and treatments every 2 hrs. around the clock.  She has slept most of the day and has had a few major desats.  Her secretions are like glue, so we are doing our best to get them out.  She was awake this evening, played with her balloon and suction yankauer for a few minutes before that wiped her out and fell back asleep.

Thank you everyone for your prayers and support.  Annabelle is back in VA with her grandparents and cousins, so hopefully that relieve some of her heartache from being away from us.  That is one of the hardest aspects of this life for us.  Having to send Annabelle away all the time.  Every time she wraps her arms tight around my neck, not wanting to let go, trying to hold back her tears, it breaks my heart.  It's like we are making her grow up too fast. And she is so amazing about all of this. So in your prayers, please pray for us as well as Annabelle, for her understanding and her peace at heart.  It's been awhile since she has had nightmares, but she has had dreams about being left in the trash or pushed into the street and no one is there to help her.

Thanks for checking in and keeping up with our lives.  The blessings we receive are humbling and encouraging.  I always pray that we can be a blessing to those around us, somehow, because we are always in such need. : ) Diana


Anonymous said…
Please know that your faith and work through your teamwork for your daughter speaks volumes. It brings glory to God. You bless people in ways only known to God.
del said…
Annabelle is a special child...and we're glad we can have her with us. We're praying for a short stay in Johnson City!

Love, Dad
Tricia said…

Your post was really touching! I can only imagine the difficulties not only handling Emily's needs, but also having to watch Annabelle grow up so fast, and the struggles she faces in doing so.

Please know that you are ALL in our prayers, and YES, you certainly are a blessing and always have been.

May the Peace of the Lord be with you during this difficult time.

Much love,
Tricia and family
Anonymous said…
Siblings sometimes have the hardest job of all. God gives them the grace and strength to handle it, I know he does to Tyler b/c he has seen some rough times. You all are wonderful parents and Annabelle knows that. Lots of love and prayers from us.
Visha said…
I hope and pray that you have a VERY short stay with Emily in Johnston City. She is such a little fighter.

Your post regarding Annabelle hits so close to home... the siblings of our special SMA kids do seem to have to grow up too quickly. I know all too well what you are speaking of. Leaving for the hospital with Taylor the 2nd time in 2 weeks, and having my Brooke tell me "PLEASE don't take her - I can't come visit her and I miss you too too much" was heart wrenching. I hope it gives you much peace knowing she is with family. She will be ok, although I know it is so hard being away from her.

As for our blessings, thoughts and prayers for your family - you guys MORE than deserve them. Ya'll do so much for ALL of us. It is the least we can do in this time of need.

Please keep us updated. I'm glad you are such a good team together and can keep one another company and somewhat rested.

Hugs, and MANY prayers to you.

Anonymous said…
Hi Diana and Family, Good to hear from you on what I consider Nate's blog. I have been following this blog for literally "years" and when I think about that, I get really excited thinking about when I first started reading and I really thought you were going to lose Emily. It has been such a blessing watching her grow and change and strengthen! I pray you guys will be home soon. Lifting up Annabelle right now! I love you guys. Julie Goyette Happy New year!