Posts

Day 4: Sinai PICU (Skilled Nursing development) #SMA

Day 3: Sinai PICU #SMA

Day 2: Sinai PICU #SMA

Day 1: Sinai PICU #SMA

Going to the PICU :/ #SMA

No, Mr. President: John Piper's Response to President Obama on Abortion

A quick December update

You are not going to believe this... #SMA #insurance #CareFirst

A great day! #SMA

Sick again #SMA (maybe #RSV)

A new site for Linnea #SMA

Happy Anniversary!! 8 big ones!!

Happy days :: #SMA

Please help our friend! :) #SMA

Hope for Emily Jewelry - Winter 2009

Keep on keepin' on #SMA

The Flu: One week down (#SMA)

Even while sick... #SMA

Still home and holding out

Flu?

Getting back to the basics

Remembering Linnea #SMA

One tooth, two tooth. Right tooth, left tooth

Hanging on the Potomac. :) #SMA

Belly taking Em on the Carousel all by herself :) #SMA

Sleeping so sound w/out BiPAP: #SMA

A couple days of being home #SMA

Going home. #SMA #PICU

Still here. #SMA #PICU

Hangin in there: #SMA #PICU

Remembering Linnea Grace #SMA

Admitted to Sinai PICU - #SMA

Sick again #SMA

Daddy-daughter time. :) #SMA

Party Success!!! #SMA

Time for Emily's birthday party!! Every year is a big deal with #SMA :)

HAPPY 4TH BIRTHDAY EMILY!!!!

Enjoying the show. Happy 4th!!!

Emily watching her first up-close fireworks show. Happy B'day USA!!!

Happy Birthday Diana!!!

7 days. 7 states. We're home!!!!

Headed home from Families of # SMA conference

In memory of Linnea Grace, our first daughter with #SMA

Trying out the EyeTech eye-gaze system

Sisters holding hands

900 attendees at this year's Families of #SMA conference.

Testing out Permobil chair at Families of #SMA conference. Emily loved it!!

Sleeping soundly. Annabelle LOVES to sleep next to Emily.

On the road to WI. Two content little kiddos. :D #roadtrip

And we're off!! #roadtrip

With the rack... #roadtrip

Just the beginning... #roadtrip

Can you help raise money for Eminnea, Inc.??

Big sister help #SMA

1st Grade: Author's Tea

Modified power chair Em's been practicing on.

Shen Leu Kwai Luh, "Pwau Pwau" - Happy Bday, Grandma!

Happy Mothers Day!!! W/ some new homemade jewelry :)

Families as Faculty Program

It's the simple things. A smaller bipap means more can fit on the vent tray!! #specialneeds

I love my kid's improvements to my face! #fatherfriday

I love watching by girls enjoying themselves! #fatherfriday

Making Gak at #CKK : Elmers glue, food coloring, liquid starch

Woodworking at Camp Courageous Kids

Made it Camp Courageous for Kids - #specialneeds weekend for #spinalmuscularatrophy weekend

Its a ritual...

Home at last :D

A good night

Stupid Influenza :/

Influenza-B

Still not sure what's up.

Sometime off BiPAP. Keep it up Emily!!

Admitting Emily to PICU

March Updating

Nothin much better than sisters :)

Emily Rolling

International Night at elementary school. Scandanavians Rule!! :)