Tuesday, June 23, 2009

Happy Birthday Diana!!!




Sunday, June 21, 2009

7 days. 7 states. We're home!!!!

Headed home from Families of # SMA conference

We had a wonderful time!!! It was great to meet everyone and make dome
new friends.

Saturday, June 20, 2009

In memory of Linnea Grace, our first daughter with #SMA

Our first SMA daughter, Linnea Grace, made the Angel Wings Awareness
Quilt!! Thinking of Linnea :)

Trying out the EyeTech eye-gaze system

As Emily grows her ability to communicate will become more difficult.
In fact, it already is difficult. Systems like the EyeTech will help
her communicate effectively with people and objects around her... Like
the Internet. We hope to get her on an eye-gaze system in the near
future. A big year for technology for Emily!!

Sisters holding hands





This is just too sweet not to post. Annabelle and Emily fell asleep just like this.... holding hands.

Friday, June 19, 2009

900 attendees at this year's Families of #SMA conference.

Wow. This conference has grown so much in just the last 3 years that
we've been attending. 900 attendees!!! Consequently, I also approved
our 900th member on www.smaspace.com today. :)

Testing out Permobil chair at Families of #SMA conference. Emily loved it!!

Emily just loves this. We're hoping to get this chair with some
modifications in the Summer sometime. It's the Permobil C300 base with
the Corpus Jr. seat and Microlite Switch. Good stuff. She did great!

Tuesday, June 16, 2009

Sleeping soundly. Annabelle LOVES to sleep next to Emily.

Annabelle is such a great sister. She just loves being with Emily and
this is a nice treat to sleep on the same bed with her.

We're doing well. Thanks to another SMA family, the Poole's, we get to
stay in a home rather than a hotel.

Thanks Cory, Katie, Avery, and Aubrey!!!

Peace <><

Monday, June 15, 2009

On the road to WI. Two content little kiddos. :D #roadtrip

Sunday, June 14, 2009

And we're off!! #roadtrip

443-355-4090
Sent from my iPhone :: Peace <><

With the rack... #roadtrip

443-355-4090
Sent from my iPhone :: Peace <><

Just the beginning... #roadtrip

443-355-4090
Sent from my iPhone :: Peace <><

Wednesday, June 10, 2009

Can you help raise money for Eminnea, Inc.??

Here's a new easy way to raise money for Eminnea Inc. Just start using Yahoo! powered GoodSearch.com as your search engine and they'll donate about a penny to Eminnea every time you do a search!

In addition, do all of your shopping through their online shopping mall, GoodShop.com, where you can shop at more than 900 top online retailers and a percentage of your purchases will go to Eminnea. You pay the same price as you normally would, but a donation goes to our work! Just be sure to select "Eminnea" as your cause!!

Here's the web site — http://www.goodsearch.com. You can also read about GoodSearch in the NY Times, Oprah Magazine, CNN, ABC News and the Wall Street Journal.