Wow! We are so happy with how the WBAL news segment turned out!! Please take 5 minutes to check it out (or click here for the YouTube broadcast) if you haven't already. Basically, we've been battling our insurance carrier over skilled nursing coverage in our home and I turned to WBAL to see if they'd be interested in doing an investigation, and you can see the result. Yeah, the situation sucks, but this is good press for Spinal Muscular Atrophy (SMA) and everyone needs to know how disabled families can easily be bullied by these MULTI-BILLION DOLLAR insurance giants.
We've received our final approval for Emily's Make-A-Wish trip!! Yep. We'll be heading to the sunny south to take in the sites of DISNEY!! WooHoo!! And, yes, we'll be sure to... oh... I dunno - maybe blog and tweet while we're there. ;)
A COURT HEARING
The other thing I haven't been talking about is this: we are going to court against CareFirst insurance over the denial of skilled nursing. We have navigated the formal and proper appeal and grievance process with both CareFirst and the Maryland Insurance Administration, as you can read in this previous post, which has lead to my requesting a court hearing with the Insurance Commissioner.
So, on 20 Apr 2010, the burden is on our family to show that CareFirst has done something unlawful by determining Emily has no qualifying medical needs for nursing and consequently canceling her nursing coverage. We'll be working on things until then.
I've been asked why we'd continue to fight this even though Emily's nursing is now covered under Maryland Medicaid. Well, if we can set some precedent for other families that are faced with this same crappy, unethical situation hopefully they'll find some comfort knowing there are other families fighting the same battle - and that they SHOULD NOT TO GIVE UP!
Let us know if that's you and maybe we can find a way to help you fight too. :)