We're on the news tonight!! #SMA

Don't miss Emily on WBAL tonight!! The I-Team is doing a special on Emily, Spinal Muscular Atrophy (SMA), and our struggles with CareFirst insurance and the Maryland Insurance Administration.

I'll post the video after they put it up. In the meantime, watch the primer.

Comments

The Dodd Family said…
I can't wait to watch this! Just the primer made me tear up. I'm proud of you!
Sky said…
I cant wait to see it, I saw the clip that was on FB today.
mm of 2 with designer genes said…
I saw you on the I team tonight. My heart goes out to Emily and your family. We are fighting a similar fight with our military medical insurance. Our medical needs are not as sever but we can relate on a similar level. Our son has two rare chromosome disorders and requires 24 hr medical care. We received skilled 8 hrs day 5 days a week nursing in san Diego, moved here in Dec to hear the same words "not a medical necessity. Your are fight a good fight! Just know you are not alone! We are praying for you and your family. Thank you for fighting! Bravo Zulu, is what we say in the navy, or great Job!!
Mom of 2 with designer genes said…
I saw you on the I team tonight. My heart goes out to Emily and your family. We are fighting a similar fight with our military medical insurance. Our medical needs are not as sever but we can relate on a similar level. Our son has two rare chromosome disorders and requires 24 hr medical care. We received skilled 8 hrs day 5 days a week nursing in san Diego, moved here in Dec to hear the same words "not a medical necessity. Your are fight a good fight! Just know you are not alone! We are praying for you and your family. Thank you for fighting! Bravo Zulu, is what we say in the navy, or great Job!!