Monday, August 15, 2011

Linnea - Another year gone by #SMA


It is that time of year again - when we remember what we have lost - Linnea - she would be 8 years old today. The reality is - I'd prefer to not have the experience to blog about, but on the other hand I would not give up the time we had with her. Figure that one out. I attempt to make sense of this daily - like maybe I "know" something I didn't or I look back and say that I have gained something positive or "grown" from it - but unfortunately, feelings of loss are far greater than intangible feelings of growth. This is not doom and gloom - it just is.

Today, we just exist - and move on as if it's any other day - only feeling substantially heavier - like weights are attached to our feet, thoughts, hands, heart, eyes - and any other physical/metaphysical thing that makes us utterly self-aware.

There is one silver lining for me! Thanks to modern technology it is easy for me to look at these pictures and remember her deeply. Thanks for checking in. Down with Spinal Muscular Atrophy (SMA)!