Linnea - Another year gone by #SMA


It is that time of year again - when we remember what we have lost - Linnea - she would be 8 years old today. The reality is - I'd prefer to not have the experience to blog about, but on the other hand I would not give up the time we had with her. Figure that one out. I attempt to make sense of this daily - like maybe I "know" something I didn't or I look back and say that I have gained something positive or "grown" from it - but unfortunately, feelings of loss are far greater than intangible feelings of growth. This is not doom and gloom - it just is.

Today, we just exist - and move on as if it's any other day - only feeling substantially heavier - like weights are attached to our feet, thoughts, hands, heart, eyes - and any other physical/metaphysical thing that makes us utterly self-aware.

There is one silver lining for me! Thanks to modern technology it is easy for me to look at these pictures and remember her deeply. Thanks for checking in. Down with Spinal Muscular Atrophy (SMA)!

Comments

Nancy Lee said…
Looking at Linnea's precious pictures melts my heart and then breaks it, again, into a million pieces.

When we see her in heaven, everything will be made right - for her and for you.
cmpoole4 said…
You guys are in our thoughts and prayers today. Thinking of sweet Linnea- what a beautiful little girl as are your others!
Sky said…
what a beautiful girl, and I know she is always looking down on you all and keeping you all safe! happy 8th Birthday Linnea!
Love you guys so much!
gettyowl.com said…
Hugs to you all. Thank you for all the light you bring into this world.
Wendy said…
We love you guys and treasure the little time we were given with her Linnea. She is a precious gift to all of us and we look forward longingly to the time we will see her again - face to face! All our love...
Nurse Krissy said…
Oh, sweet friends...
Those pictures melt me to tears every time I see them.
We love you all so much and our hearts are heavy for you today...and Sept 21st...
Thanks for posting something Nathan. I can only imagine how hard it would be...but thanks for sharing your heart and reminding all of us about the burden you bear every day of your life.
-The Koslowsky Crew
Mary C said…
Thanks for sharing this, Nate - Remembering your sweet girl and praying for your family.
tina617 said…
Sending cyber (((HUGS))) to your family. Thank you for sharing Linnea's pictures with us again. Happy Birthday Sweet Angel!