<?xml version='1.0' encoding='UTF-8'?><?xml-stylesheet href="http://www.blogger.com/styles/atom.css" type="text/css"?><feed xmlns='http://www.w3.org/2005/Atom' xmlns:openSearch='http://a9.com/-/spec/opensearchrss/1.0/'><id>tag:blogger.com,1999:blog-26397415.post4810817090235238788..comments</id><updated>2009-11-15T17:38:30.826-05:00</updated><category term='fundraiser'/><category term='2009'/><category term='dad'/><category term='frog'/><category term='metapneumovirus'/><category term='golf tournament'/><category term='infection'/><category term='news'/><category term='PICU'/><category term='dafo'/><category term='sisters'/><category term='permobil'/><category term='BookProject'/><category term='mrsa'/><category term='competition'/><category term='new'/><category term='gwendolyn strong foundation'/><category term='abortion'/><category term='tracheotomy'/><category term='baltimore'/><category term='diana'/><category term='picasa'/><category term='medical'/><category 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term='travel'/><category term='rolling'/><category term='spring'/><category term='family'/><category term='3'/><category term='John Farese'/><category term='humor'/><category term='makeover'/><category term='exercise'/><category term='medical fund'/><category term='diy'/><category term='christmas eve'/><category term='blue cross'/><category term='going home'/><category term='CHOP'/><category term='tennessee'/><category term='hmpv'/><category term='college'/><category term='camping'/><category term='sma talking therapy'/><category term='approval'/><category term='school'/><category term='hopkins'/><category term='links'/><category term='mustang club'/><category term='rickshaw'/><category term='1st grade'/><category term='puppy'/><category term='non-par'/><category term='photo'/><category term='medicaid'/><category term='sunny'/><category term='power chair'/><category term='lyme'/><category term='Rollx'/><category term='lynn_wheeler'/><category term='medical van'/><category term='adirondacks'/><category term='forsale'/><category term='google apps'/><category term='hospital'/><category term='johnson city'/><category term='Summer'/><category term='RT&apos;s'/><category term='ustream'/><category term='FSMA'/><category term='tlso'/><category term='elementary'/><category term='treatments'/><category term='beach'/><category term='snowpocalypse'/><category term='photos'/><category term='crazy'/><category term='general'/><category term='motocycle'/><category term='respiratory'/><category term='maryland'/><category term='primer'/><category term='piper'/><category term='fundraising'/><category term='desats'/><category term='catabolic'/><category term='Sinai'/><category term='contingency'/><category term='pulmonary'/><category term='synagis'/><category term='fever'/><category term='sister'/><category term='Linnea'/><category term='prayer'/><category term='friends'/><category term='hells kitchen'/><category term='annabelle'/><category term='research'/><category term='birthday'/><category term='grievance'/><category term='ohio'/><category term='vacation'/><category term='denial'/><category term='ananbelle'/><category term='reunion'/><category term='party'/><category term='2010'/><category term='YouTube'/><category term='happy'/><category term='dog'/><category term='employer'/><category term='petition'/><category term='life'/><category term='broadcast'/><category term='parents'/><category term='intubation'/><category term='dreams'/><category term='jobs'/><category term='curious'/><category term='SNOW'/><category term='physicians'/><category term='goodsearch'/><category term='play'/><category term='nurses'/><category term='mall'/><category term='Fall'/><category term='home repair'/><category term='fightsma'/><category term='make-a-wish'/><category term='van ride'/><title type='text'>Comments on Emily Updates: Keep on keepin' on #SMA</title><link rel='http://schemas.google.com/g/2005#feed' type='application/atom+xml' href='http://blog.hopeforemily.com/feeds/4810817090235238788/comments/default'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/26397415/4810817090235238788/comments/default'/><link rel='alternate' type='text/html' href='http://blog.hopeforemily.com/2009/11/keep-on-keepin-on-sma.html'/><author><name>Nate</name><uri>http://www.blogger.com/profile/07015631742777447805</uri><email>noreply@blogger.com</email><gd:image xmlns:gd='http://schemas.google.com/g/2005' rel='http://schemas.google.com/g/2005#thumbnail' width='22' height='32' src='http://2.bp.blogspot.com/_CeOZErpnF6w/Sj-o0aV3F4I/AAAAAAAALmo/nrvqd917GzQ/S220/profilepic.jpg'/></author><generator version='7.00' uri='http://www.blogger.com'>Blogger</generator><openSearch:totalResults>5</openSearch:totalResults><openSearch:startIndex>1</openSearch:startIndex><openSearch:itemsPerPage>25</openSearch:itemsPerPage><entry><id>tag:blogger.com,1999:blog-26397415.post-3701876494268034576</id><published>2009-11-15T17:38:30.826-05:00</published><updated>2009-11-15T17:38:30.826-05:00</updated><title type='text'>I know I don&amp;#39;t post often but know we think of...</title><content type='html'>I know I don&amp;#39;t post often but know we think of you often!!  Glad Emily is on the mend and praying you get resolution with her services . . . we empathize.  Hugs!</content><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/26397415/4810817090235238788/comments/default/3701876494268034576'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/26397415/4810817090235238788/comments/default/3701876494268034576'/><link rel='alternate' type='text/html' href='http://blog.hopeforemily.com/2009/11/keep-on-keepin-on-sma.html?showComment=1258324710826#c3701876494268034576' title=''/><author><name>CureSMA4Stella</name><uri>http://www.blogger.com/profile/04894468106949266315</uri><email>noreply@blogger.com</email><gd:extendedProperty xmlns:gd='http://schemas.google.com/g/2005' name='OpenSocialUserId' value='12715753884087517516'/><gd:image xmlns:gd='http://schemas.google.com/g/2005' rel='http://schemas.google.com/g/2005#thumbnail' width='32' height='20' src='http://3.bp.blogspot.com/_x0mRTTUD97Y/SWo6G03fXMI/AAAAAAAAAAY/htnPmcoS1Tk/S220/StellaCamoWeb.jpg'/></author><thr:in-reply-to xmlns:thr='http://purl.org/syndication/thread/1.0' href='http://blog.hopeforemily.com/2009/11/keep-on-keepin-on-sma.html' ref='tag:blogger.com,1999:blog-26397415.post-4810817090235238788' source='http://www.blogger.com/feeds/26397415/posts/default/4810817090235238788' type='text/html'/><gd:extendedProperty xmlns:gd='http://schemas.google.com/g/2005' name='blogger.itemClass' value='pid-288305253'/></entry><entry><id>tag:blogger.com,1999:blog-26397415.post-5319618510333139440</id><published>2009-11-12T11:40:12.915-05:00</published><updated>2009-11-12T11:40:12.915-05:00</updated><title type='text'>That is sometimes the hardest challenge of all - t...</title><content type='html'>That is sometimes the hardest challenge of all - trying to put into words what defies description.  I heard a pastor say words are trucks that take our thoughts and feelings out where other people can encounter them...and he said, &amp;quot;Sometimes there are no trucks big enough.&amp;quot;&lt;br /&gt;&lt;br /&gt;Emily&amp;#39;s daily fight to survive, and your fight to help her, simply can&amp;#39;t be covered by mere words.  This is not news to you, obviously.  It isn&amp;#39;t that you don&amp;#39;t try (or that you don&amp;#39;t do a great job writing!).  It is just that words have limits.  Only the Lord knows the true extent of the burden.&lt;br /&gt;&lt;br /&gt;Of course, none of this makes your efforts to get help from insurance companies, nurses, doctors (etc.) any less.&lt;br /&gt;&lt;br /&gt;Sometimes you must want to pull your hair out!!!!!!!!!!!&lt;br /&gt;&lt;br /&gt;Thank you **so much** for not quitting, all of you.&lt;br /&gt;&lt;br /&gt;Thinking of you very often,&lt;br /&gt;&lt;br /&gt;Cathy Groves&lt;br /&gt;pouzel@juno.com</content><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/26397415/4810817090235238788/comments/default/5319618510333139440'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/26397415/4810817090235238788/comments/default/5319618510333139440'/><link rel='alternate' type='text/html' href='http://blog.hopeforemily.com/2009/11/keep-on-keepin-on-sma.html?showComment=1258044012915#c5319618510333139440' title=''/><author><name>Groves</name><uri>http://www.blogger.com/profile/14867095709948739457</uri><email>noreply@blogger.com</email><gd:image xmlns:gd='http://schemas.google.com/g/2005' rel='http://schemas.google.com/g/2005#thumbnail' width='16' height='16' src='http://img2.blogblog.com/img/b16-rounded.gif'/></author><thr:in-reply-to xmlns:thr='http://purl.org/syndication/thread/1.0' href='http://blog.hopeforemily.com/2009/11/keep-on-keepin-on-sma.html' ref='tag:blogger.com,1999:blog-26397415.post-4810817090235238788' source='http://www.blogger.com/feeds/26397415/posts/default/4810817090235238788' type='text/html'/><gd:extendedProperty xmlns:gd='http://schemas.google.com/g/2005' name='blogger.itemClass' value='pid-833516032'/></entry><entry><id>tag:blogger.com,1999:blog-26397415.post-6476767618757385182</id><published>2009-11-12T09:29:58.627-05:00</published><updated>2009-11-12T09:29:58.627-05:00</updated><title type='text'>This is so good to hear! Bravo, Emily!  We&amp;#39;ll ...</title><content type='html'>This is so good to hear! Bravo, Emily!  We&amp;#39;ll continue to pray for her and for all of you (especially regarding the nursing stuff).</content><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/26397415/4810817090235238788/comments/default/6476767618757385182'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/26397415/4810817090235238788/comments/default/6476767618757385182'/><link rel='alternate' type='text/html' href='http://blog.hopeforemily.com/2009/11/keep-on-keepin-on-sma.html?showComment=1258036198627#c6476767618757385182' title=''/><author><name>Felix</name><uri>http://www.blogger.com/profile/12811025587674013905</uri><email>noreply@blogger.com</email><gd:image xmlns:gd='http://schemas.google.com/g/2005' rel='http://schemas.google.com/g/2005#thumbnail' width='32' height='24' src='http://4.bp.blogspot.com/_e4M6Ki_YvTo/SmiTPJipe9I/AAAAAAAAAFg/rgE8sz6cs1Q/S220/Blue+Castle.jpg'/></author><thr:in-reply-to xmlns:thr='http://purl.org/syndication/thread/1.0' href='http://blog.hopeforemily.com/2009/11/keep-on-keepin-on-sma.html' ref='tag:blogger.com,1999:blog-26397415.post-4810817090235238788' source='http://www.blogger.com/feeds/26397415/posts/default/4810817090235238788' type='text/html'/><gd:extendedProperty xmlns:gd='http://schemas.google.com/g/2005' name='blogger.itemClass' value='pid-1287062989'/></entry><entry><id>tag:blogger.com,1999:blog-26397415.post-2433557440432245334</id><published>2009-11-11T14:46:07.090-05:00</published><updated>2009-11-11T14:46:07.090-05:00</updated><title type='text'>Yay!  Glad to hear Emily is doing better.  Hopeful...</title><content type='html'>Yay!  Glad to hear Emily is doing better.  Hopefully you will get the nursing situation settled soon!</content><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/26397415/4810817090235238788/comments/default/2433557440432245334'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/26397415/4810817090235238788/comments/default/2433557440432245334'/><link rel='alternate' type='text/html' href='http://blog.hopeforemily.com/2009/11/keep-on-keepin-on-sma.html?showComment=1257968767090#c2433557440432245334' title=''/><author><name>Mary</name><uri>http://www.blogger.com/profile/15964451527767232016</uri><email>noreply@blogger.com</email><gd:extendedProperty xmlns:gd='http://schemas.google.com/g/2005' name='OpenSocialUserId' value='00437721518647146503'/><gd:image xmlns:gd='http://schemas.google.com/g/2005' rel='http://schemas.google.com/g/2005#thumbnail' width='24' height='32' src='http://3.bp.blogspot.com/_bdRbYCXvoOA/SoIcIIOmB4I/AAAAAAAACwk/ZuQlgRMoSPI/S220/002.JPG'/></author><thr:in-reply-to xmlns:thr='http://purl.org/syndication/thread/1.0' href='http://blog.hopeforemily.com/2009/11/keep-on-keepin-on-sma.html' ref='tag:blogger.com,1999:blog-26397415.post-4810817090235238788' source='http://www.blogger.com/feeds/26397415/posts/default/4810817090235238788' type='text/html'/><gd:extendedProperty xmlns:gd='http://schemas.google.com/g/2005' name='blogger.itemClass' value='pid-1577725475'/></entry><entry><id>tag:blogger.com,1999:blog-26397415.post-4127846093992351913</id><published>2009-11-11T14:03:38.194-05:00</published><updated>2009-11-11T14:03:38.194-05:00</updated><title type='text'>I&amp;#39;m so glad to hear Emily is doing better!</title><content type='html'>I&amp;#39;m so glad to hear Emily is doing better!</content><link rel='edit' type='application/atom+xml' href='http://www.blogger.com/feeds/26397415/4810817090235238788/comments/default/4127846093992351913'/><link rel='self' type='application/atom+xml' href='http://www.blogger.com/feeds/26397415/4810817090235238788/comments/default/4127846093992351913'/><link rel='alternate' type='text/html' href='http://blog.hopeforemily.com/2009/11/keep-on-keepin-on-sma.html?showComment=1257966218194#c4127846093992351913' title=''/><author><name>Brandy</name><uri>http://www.blogger.com/profile/14657852521677073166</uri><email>noreply@blogger.com</email><gd:extendedProperty xmlns:gd='http://schemas.google.com/g/2005' name='OpenSocialUserId' value='17810642215865818025'/><gd:image xmlns:gd='http://schemas.google.com/g/2005' rel='http://schemas.google.com/g/2005#thumbnail' width='25' height='32' src='http://3.bp.blogspot.com/_hND1xn4c8Pk/Sj3OtUXmKOI/AAAAAAAAANM/bKpYHKapWxo/S220/113.JPG'/></author><thr:in-reply-to xmlns:thr='http://purl.org/syndication/thread/1.0' href='http://blog.hopeforemily.com/2009/11/keep-on-keepin-on-sma.html' ref='tag:blogger.com,1999:blog-26397415.post-4810817090235238788' source='http://www.blogger.com/feeds/26397415/posts/default/4810817090235238788' type='text/html'/><gd:extendedProperty xmlns:gd='http://schemas.google.com/g/2005' name='blogger.itemClass' value='pid-1073705130'/></entry></feed>
